Cancer registrars are important members of the anti-cancer movement, as they serve as experts in both data collection and data analysis related to all forms of cancer. They collect information about patient histories, diagnoses, treatments, and statuses; then translate the information into statistics for future studies. These statistics are reported to various healthcare agencies, including oncologists, administrators, researchers, and healthcare planners. The data collected by cancer registrars is intended to help oncologists and other healthcare professionals work toward the ultimate goal of controlling and preventing cancer.
What Types of Data are Compiled?
Cancer registrars are in charge of researching and compiling data in a timely manner, while ensuring that all of their findings are accurate. Generally, they compile and maintain information on all types of cancer being diagnosed or treated within an institution or specific population. They put together complete summaries for each patient that begin at the time of diagnosis and continue on through their lifetime. The ultimate goal is to create a registry that tracks each patient’s history individually, as well as an overall profile that shows information for all patients included in the registry. Thanks to modern technology, cancer registrars use electronic databases and computer software to help them input, track, and analyze the data they collect.
Who do Cancer Registrars Share Information With?
Often working closely with cancer programs and institutions, cancer registrars are usually an active part of the leadership structure of the facilities that employ them. They monitor the overall quality of patient care, ensure that treatments are meeting clinical practice guidelines, assess patterns of care, and monitor side effects, along with adverse outcomes of treatments. Oncologists use information collected by cancer registrars to create and evaluate treatment plans for patients; researchers often use the statistics cancer registrars compile as a starting point for their hypotheses. The data is also a valuable resource for educating the public about the incidence and outcomes of many different types of cancer.
Cancer registrars may find employment in healthcare facilities, central registries, consulting firms, government agencies, insurance companies, pharmaceutical companies and other healthcare industries.
Who is Eligible to Operate a Cancer Registrar?
Cancer registrars are run by a board of directors who either trained on-the-job or attended college programs in cancer data management. College programs provide aspiring registrar members with a strong foundation of knowledge in data collection methods, medical terminology, biostatistics, and cancer data abstracting. Many not-for-profit organizations earn certification from the National Cancer Registrars Association, which also offers a variety of benefits and resources to members to help them throughout their research.